Long Term Problem

by Sara Powell
(Richmond, VA)

I would have never let them tube my child if I had known that he would become 100% tube dependent.

My son had an NG tube placed at 6 months, and a g-tube at 12 months, and is now almost 3 and has no idea how to swallow food. He won't even put it in his mouth.

I wish the "experts" had shown us warning signs of tube dependency, and worked with us on making sure it did not happen. Now I feel as if we are completely screwed. I wish I could grow to love the tube but I hate it with all of my heart and soul.

Rarely someone will tell me of a child they know who might be tubed and I always tell them DON'T DO IT. I've saved two children already from it, who are now thriving just fine without tubes.